Sports

I’m a huge Red Sox fan and I hate the Yankees. I once met Jason Veritek through Children’s Hospital. He signed baseballs, my hat, and a shirt for me. He was really nice and I could see why he was team captain. My favorite sport is soccer and I’ve played for 8 years. My dad was my coach for many seasons. I also had the chance to shake hands with a few players from the New England Revolution. That was a special moment. While Hunter syndrome has prevented me from playing many sports that I used to due to discomfort, I am still able to participate in fun physical and competitive activities. I’ve since discovered a love for ping pong and just recently got a ping pong table at my house so I can play whenever I want. I am also hoping to start a ping pong club once school starts. I also love to swim and ride my bike much like other kids, proving that having Hunter syndrome has not stood in my way of having fun outdoors.

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About My Life

Hi my name is Kyle Plunkett. I’ve lived with Hunter syndrome for 16 years. It’s been my curse, my gift and my life. I always did all the things “normal” kids did but still had challenges to face. I go through life with my head up and never look back. I’ve set goals for myself that include going to college, starting a career and having a family. Right now I live at home with my Mom, Dad, older brother Dan, and two dogs named Nilly and Marley and a cat named Rita. I am a junior in high school and looking forward to planning for college. I’m ready to see what the world has in store for me.

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My Hobbies

Like most kids, I have hobbies that interest me. I am an avid movie fan and have a collection of DVD’s and Marvel action figures. I probably have about 100 action figures. My favorites are Spiderman and Hulk. Reading is one of the things I do in my spare time. I enjoy reading Marvel comic books and fiction. I really like reading the comics because when I read them, I feel like I’m transported into another world. Harry Potter is one of the first series I read and I once won a contest for the best Harry Potter costume when I was younger. I really like Harry Potter because I can relate to him as a kid who overcomes challenges. I just saw the new movie and thought it was great. Right now I’m reading The World According to Garp by John Irving.


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Places I’ve Visited

I enjoy traveling and seeing new places. I’ve been to Maine, North Carolina, Arizona, Florida, Hawaii, and California. My grandparents live just outside of Phoenix, and while we were there we saw the Grand Canyon. It was spectacular. Most recently my family and I traveled to Hawaii, to see my Grandmother’s sister. My Grandmother’s sister is 85 and they haven’t seen each other for 5 years. In Hawaii I snorkeled, visited the Volcano National Park, and went a hundred feet below sea level in a submarine called the Atlantis. My trip to Hawaii was spectacular and I hope to go another time. Someday I’d like to go to Europe. My Dad’s family is from Ireland and I’m proud of my Irish heritage. Even my name, Kyle, is really Irish. One of my goals is to kiss the Blarney Stone and explore the castles in Ireland.

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Hanging With Friends

Friends are an important part of my world. There are people I’ve known since pre-school and others I’ve met through Hunter syndrome. Watching movies, going to the mall, playing sports and just chilling with my friends are some of the activities that I like to do. One of the gifts of having Hunter syndrome is that it’s allowed me to meet lots of different people. One special friend has helped me when I’ve been hospitalized and was even in the operating room when I had shunt surgery. I met him when he was in his first year of medical school at Harvard. I was introduced to him by my geneticist during one of my hospital visits. He had to research Hunter syndrome and write a report for one of his classes. Through the project he spent a lot of time at the hospital and we became great friends. His name is Ben and he’s a doctor now doing his residency at a hospital in LA. We talk on the phone and text each other a few times a week. He’s such a great friend because he’s always been there for me.

Another one of my friends has been a friend forever. Even though I have Hunter syndrome we have always been buds. We have known each other since pre-school.


If you’d like to share your story, please email us at webmaster@hunterpatients.com. We may contact you for more information after we receive your submission.